Molly

Age 5

Keech Hospice Care

"My daddy"

My name is Molly. I am five years old. I was born with a craniofacial condition called crouzon syndrome. I have also been diagnosed with hydrocephalus, chiari malformation, syringomyelia, and occipital neuralgia.

I have lots of problems with my eyes, ears, speech, chronic pain in my head, neck and legs.

The picture I have painted is of my daddy. He is wearing his favourite T shirt, which is his Batman T-shirt that I bought him.

My hero is my daddy. I love my daddy very much. He always takes me to hospital quickly when I am poorly. He plays with me at hospital and when I am tired or really ill, daddy lets me feel his nails. I like shiny things as a comfort and daddy's nails are very shiny.

I have to go into hospital again soon for lots more tests and my daddy is going to put my nametag on my wrist as I don't like it, but I know my daddy won't hurt me.

I love going to my hospice, Keech Hospice Care, as I get to watch Batman films, play, paint and have lots of fun. I love doing music with Anna my music therapist. We make lots of noise with the drums at Keech. Last year, I had major surgery and Anna came to hospital with her guitar and some instruments to make me smile.

Please note this case study (images and copy) must not be used or replicated in any other form without prior consent from Children's Hospices UK.

This artwork is framed in a white wood frame. The artwork measures 810mm wide, by 1780mm high.